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Pediatric Resource Guide

Baylor University School of Nursing

Colleen Collins, Felecia High, Becky Robbins, Helen Shoa, Donna Tate

Primary Resources

Abuse
ADD/ADHD
AIDS
Asthma
Brain Injury
Cancer
Cerebral Palsy
Cystic Fibrosis
Early Interventions
Eating Disorders
Epilepsy/Seizures
Juvenile Diabetes
Latex Allergies
Multiple Sclerosis
Muscular Dystrophy
Scoliosis
Sickle Cell Anemia
Spina Bifida
Pediatric Medical Database (PEDBASE) External Online Resource. Check it out. You'll be glad you did!

Additional Resources


Abuse

Symptoms/Physical Findings

Child maltreatment as defined in the Child Abuse Prevention and Treatment Act (CAPTA) 10/96. CAPTA defines child abuse and neglect as "at a minimum, any recent act or failure to act on the part of a parent or caretaker, which results in death, serious physical or emotional harm, sexual abuse or exploitation, or an act or failure to act which presents an imminent risk of serious harm."
Child maltreatment can include emotional abuse, neglect, physical and sexual abuse.

National

International Child Abuse Network
Yes ICAN
P.O. Box 7002
Van Nuys, CA 91409
888-224-4226
http://www.yesican.org

National Clearinghouse on Child Abuse and Neglect
P.O. Box 1182
Washington, DC 20013-1192
800-FYI-3366
703-385-7565
http://www.calib.com/nccanch/

National Committee to Prevent Child Abuse
200 South Michigan Avenue
Chicago, IL 60604-4357
312-663-3520
312-939-8962 (FAX)
http://www.childabuse.org

Local

Child Protective Services (CPS)
817-640-6200
800-252-5400 (24 hour hotline)

Child & Family Guidance Center
8915 Harry Hines Blvd.
Dallas, TX 75235
214-351-3490
214-352-352-0871 (FAX)
http://www.childrenandfamilies.org

Children First Counseling Center
217 W. Main, Suite 100
Grand Prairie, TX 75050
972-264-0604
972-264-9998 (FAX)                                           

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ADD/ADHD

Children with attention-deficit disorder have difficulty focusing their attention and/or engaging in quiet,passive activities. Diagnosis is difficult before age 4 unless symptoms are severe.

Symptoms/Physical Findings

Children are characterized as fidgeters and daydreamers
Easily distracted by irrelevant thoughts, sounds, or sights
School performance patterns are sporadic
Jumps from one project to another

National

Children and Adults with Attention Deficit Disorder (C.H.A.D.D.)
499 Northwest 70th Avenue, Suite 101
Plantation, Florida 33317
http://www.chadd.org

Local

Attention Deficit Disorder Association-Southern Region
972-467-9299

Best Southwest Area Chapter ADDA-SR
Southwest Counseling Services
400 E. Center, Suite B200
Duncanville, TX 75116

C.H.A.D.D. (North Texas Chapter)
P.O. Box 550274
Dallas, TX 75355
817-923-0771

PATH Project (Parent advocacy group for education)
817-498-9918

Richardson-Garland Chapter ADDA-SR
972-494-2928

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AIDS

A viral infection caused by the HIV virus that attackes and weakens the immune system.

Associated Conditions/Difficulties

Opportunistic infections

Wasting syndrome

Unusual cancers

Blood abnormalities

Dementia

Nutritional deficits

National

CDC National AIDS hotline (24 hour hotline for HIV & AIDS)
English: 1-800-342-AIDS
Spanish: 1-800-344-7432
TDD: 1-800-243-7889

AIDS National Hotline 1-800-342-2437
National AIDS Information Clearing House 1-800-458-5231

Local

Pediatric AIDS Network Dallas Area (PANDA)
ARMS Clinic @ Children's Medical Center
1935 Motor Street
Dallas, TX 75235
Contact Person: Pam Newton
214-640-2776
214-640-5702 (FAX)
E-mail: pnewto@childmed.dallas.tx.us

Catholic Charities Pediatric & Family HIV/AIDS Project
2641 Avenue L
Ft. Worth, TX 76104
817-536-1160
817-536-4671 (FAX)

Bryan's House
P.O. Box 191402
Dallas, TX 75219
214-559-3946
214-559-2827 (FAX)
http://www.bryanshouse.org

Website of One Family's Story About AIDS

 http://www.startribune.com/stonline/html/special/aids/
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Asthma

A chronic respiratory condition, often arising from allergies and accompanied by labored breathing, chest constriction, and coughing.

Symptoms/Physical Findings

Shortness of breath

Pallor or cyanosis

Wheezing

Rapid pulse

Anxiety

Nasal flaring

Coughing

Rapid, shallow breaths

National

American Lung Association
1740 Broadway
New York, NY 10019
1-800-LUNG-USA
http://www.lungusa.org

Asthma & Allergy Foundation of America
1717 Massachusetts Avenue
Washington, DC 20036
202-466-7643

Local

American Lung Association (Dallas Area)
7616 LBJ Freeway, Suite 100
Dallas, TX 75251
214-239-LUNG

Other Resources

Internet Tutuorial on Asthma
http://www.med.virginia.edu/docs/cmc/tutorials/asthma/asthma1.html
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Brain Injury

Trauma to the brain caused by impact, tumor, stroke, and or anoxia. Injury can be primary such as a blow to the head or secondary such as trauma caused by swelling.

Problems after brain injury

Hematoma
Brain swelling/edema
Increased intracranial pressure
Cerebral vasospasm
Intracranial infection
Epilepsy/seizures

National

The Brain Injury Association Inc.
105 North Alfred Street
Alexandria, VA 22314
703-236-6000
1-800-444-6443
http://www.biausa.org

Local

Brain Injury Association of Texas
1330 Lamar Square Drive
Austin, TX 78704
512-326-1212
1-800-392-0040 (Texas only)

Books

Head Injury: The Facts
By Dorothy Gronwall, Phillip Wrightson, & Peter Waddell (Oxford University Press)
TOP


Cancer

National

American Cancer Society
1599 Clifton Rd., N.E.
Atlanta, Georgia 30329
1-800-ACS-2345
http://www.cancer.org

Cancer Information Service (English and Spanish)
1-800-4-CANCER

Local

American Cancer Society - Dallas
8900 Carpenter Freeway
Dallas, TX 75247
P.O. Box 560089
Dallas, TX 75356
214-631-3850
TOP


Cerebral Palsy

A condition affecting the control of the muscles (too tight or too loose) due to injury of the brain.

Associated Conditions/Difficulties

Poor head control

Learning problems

Stiff or rigid limbs

Seizures

Arching back

Difficulty eating

Difficulty speaking

National

United Cerebral Palsy Association, Inc. (UCPA)
1522 K St. NW, Suite 1112
Washington, DC 20005
1-800-872-5827
http://www.ucpa.org

Local

UCP of Metropolitan Dallas
8802 Harry Hines Blvd.
Dallas, TX 75523-1716
214-351-2500 ext.201
1-800-999-1898 (Texas only)
http://www.ucpdallas.org

Other Resources

Internet Tutorial on Cerebral Palsy
http://www.med.virginia.edu/medicine/clinical/pediatrics/CMC/tutorials/cp/cp.htm
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Cystic Fibrosis

A generalized dysfunction of the exocrine glands that affects multiple organ systems (sweat glands, respiratory system, and GI tract).

Signs and Symptoms

The symptoms are associated with thick bronchial, pancreatic and other mucous gland secretions and consequent obstruction of glandular ducts. CF accounts for almost all cases of pancreatic enzyme deficiency in children.

National

Cystic Firbosis Foundation
6931 Arlington Road
Bethesda, MD 20814
1-800-344-4823 (FIGHTCF)
http://www.cf.org

Local

Cystic Fibrosis Foundation
Northeast Texas Chapter
2929 Carlisle, Suite 230
Dallas, TX 75204-1058
214-871-2222

Cystic Fibrosis Care, Teaching, and Research Center
Children's Medical Center
1935 Motor Street
Dallas, TX 75235
214-640-2361

Cystic Fibrosis Center @ Children's Medical Center
801 Seventh Avenue
Ft. Worth, TX 76104-2796
817-885-4207

Other Resources

Educational videos for purchase
1-800-344-4823 (FIGHTCF)

Network quartelry newsletter
CF Network Inc.
P.O. Box 3459
Littleton, CO 80161-3459

TOP


Early Intervention Programs

National

Early Intervention Programs
Alleghany County Health Department
County Office Building
Belmont, NY 14813
716-268-9263

Services: The early intervention progam provides early identification, screening, evaluation, services either in the home or at a center based facility. Those children with suspected developmental delays, a diagnosed disability, or condition affecting development are eligible for the early intervention program. The program is offered at no cost to families.

Corporation for National Service
1201 New York Avenue, NW
Washington, DC 20525

Services: Corporation for National Service is a public-private partnership that administers three national service initiatives: AmericCorps, National Senior Service Corps. and Learn and Serve America.

AmeriCoprs
P.O. Box 438
Beltsville, MD 20704-9977
1-800-220-6316
http://www.americorps.org

Services: Participation in reading and tutoring programs.

Center for Effective Collaboration and Practice (CECP)
1000 Thomas Jefferson Street NW, Suite 400
Washington, DC 20007
202-944-5400
1-888-457-1551

Service: Early intervention for children with serious emotional disturbances. It provides coordinated services at home, at school, and in the community.

TOP


Eating Disorders

Anorexia Nervosa

A disorder that involves extreme weight loss due to obsession with being thin leading to self starvation.

Bulimia

A destructive pattern of excessive overeating followed by vomiting or other "purging" behaviors to control weight. This disorder is easily hidden due to normal or above normal body weight.

Binge Eating Disorder

A disorder characterized by episodes of uncontrolled eating or bingeing triggered by emotional states such as anxiety, sadness, and or boredom. Those afflicted often are obese and have a history of weight changes.

Local

Bourland Mental Health & Consulting
1450 Preston Forest Square, Suite 203
Dallas, TX 75230
972-503-4803
E-mail: bourland@happyme.com
http://www.happyme.com

Nutrtitionconsulting.com
A Service provided by telephone, e-mail and postal service. Consists of an assessment and appropriate treatment goals. Consent form required.
e-mail: susan@nutritionconsulting.com
http://www.nutritionconsulting.com

Eating Disorder Recovery On-Line
http://www.edrecovery.com

Books

Bare Bones
By Gail Weissman (North Star Publications)
http://www.capital.net/~dkc/

Wasted: A memoir of Anorexia and Bulimia
By Marya Hornbacher

Straight Talk About Eating Disorders
By Michael Maloney and Rachel Kranz

TOP


Epilepsy/Seizures

A neural disorder characterized by recurring attacks of motor, sensory, or psychic malfunction with or without loss of consciousness or convulsive movements.

What to do when a seizure happens

Remove nearby objects that could cause injury
Allow the seizure to run its course
Place person in side lying position
Don't put anything in their mouth
Call an ambulance if longer than 3 minutes

National

Epilepsy foundation
4351 Garden City Drive
Landover, MD 20785
1-800-EFA-1000
http://www.efa.org

Comprehensive Epilepsy Program
660 S. Euclid Avenue Box 8111
St. Louis, MO 63110
314-362-3888
http://www.neuro.wustl.edu/epilepsy

Local

Epilepsy foundation of Greater North Texas
2906 Swiss Avenue
Dallas, TX 75204
214-823-8809

Books

A Guide to Understanding and Living with Epilepsy
By Orrin Devinsky, MD F.A. (Davis Company)

Dotty the Dalmation has Epilepsy
From the Dr. Wellbook collection (Tim Peters & Company)

The Epilepsy Diet Treatment: An Introduction to the Ketogenic Diet
By John M. Freeman, MD, Millicent T. Kelly, RD, LD, & Jennifer B. Freeman (Demos)

TOP


Juvenile Diabetes

An autoimmune disease in which the body destroys insulin-producing cells in the pancreas. Insulin is required by the body to use glucose, the simple sugar that most foods are broken down into by our digestive system.

Signs and Symptoms

Excessive thirst

Fatigue

Excessive urination

Blurred vision

Excessive hunger

High blood sugar levels

Weight loss

Sugar and ketones in the urine

National

National Juvenile Diabetes Foundation
120 Wall Street 19th Floor
New York, NY 10005
1-800-223-1138

Local

Dallas Chapter
9400 N. Central Expressway, Suite 610
Dallas, TX 75231
214-373-9808

Tarrant County Chapter
601 Bailey
Ft. Worth, TX 76107
817-332-2601

Other Resources

Countdown
(Quarterly magazine about diabetes)

American Association of Diabetic Educators
100 West Monroe 4th Floor
Chicago, IL 60603
1-800-832-6874 (TEAMUP4)

The Diabetes Mall
1030 W. Upas Street
San Diego, CA 92103
619-497-0900
http://www.diabetesnet.com

Juvenile Diabetes Foundation Library
http://www.jdfcure.org/library.htm

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Latex Sensitivity/Allergies

A mild to severe reaction to latex containing products and some foods. Avoid handling food products with latex gloves due to the latex proteins being transferred to the food.

Signs and Symptoms

Itchy/watery eyes

Hives

Wheezing

Rash

Anaphylactic Shock

Common Foods Associated with Latex Sensitivities

Avacadoes

Bananas

Chestnuts

Chewing Gum

Kiwi

Milk

Pinapple

Potatoes

Tomatoes

Common Household Items Containing Latex

Pacifiers

Balloons

Feeding nipples

Elastic in clothing

Rubber bands

Bungee Cords

Newsprint

Ads/coupons

Zippered plastic storage bags

Lottery scratch tickets

Art supplies: paints, glue, erasers, fabric paints

Water Toys and Equipment: beach thongs, masks, bathing caps, scuba gear, goggles

Other Resources

American College of Allergy, Asthma and Immunology
85 W. Algonguin Road, Suite 550
Arlington Heights, IL 60005
http://allergy.mcg.edu/physicians/ltxhome.html

FDA Latex Allergy Hotline
301-594-3585

FDA MedWatch product problem reporting
800-332-1088

Alternative Resources Catalogue
Latex free products for the home and community
412-486-4476 or 800-619-3129

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Multiple Sclerosis

A progressive disease affecting the myelination of the brain and spinal cord, characterized by periods of exacerbation and remission.

Associated Conditions/Difficulties

Visual problems

Incontinence

Blurred vision

Mood swings

Sensory impairment

Irritability/Happiness

Muscle weakness

Depression

International

International MS Support Foundation
P.O. Box 90154
Tucson, AZ 85752-0154
http://aspin.asu.edu/msnews

National

The National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
1-800-344-4867 (Fight-MS)
http://www.nmss.org

Local

The National Multiple Sclerosis Society (North Texas Chapter)
8750 North Central Expressway, Suite 1030
Dallas, TX 75231
214-373-1400 or 214-373-7200

MS Center (Baylor Institute for Rehabiliation)
3505 Gaston Avenue
Dallas, TX 75246
214-826-7030

Books

You Are Not Your Illness
By Linda Nobel-Topf, MA

In the Shadow - Living and coping with a loved one's chronic illness
By David Luterman, D. Ed.

Fall Down Seven Times. Get Up Eight
By John K. Wolf, MD

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Muscular Dystrophy

A group of hereditary disorders characterized by slow wasting of the muscles without neurologic or sensory difficulties. Duchenne's is 50% of the diagnosed types of muscular dystrophy and affects males most of the time.

Crippling disability

Cardiac problems

Decreased respiratory function

Contractors

Increased risk of pneumonia and respiratory infections

National

Muscular Dystrophy Assocation
National Headquarters
3300 East Sunrise Drive
Tuscon, AZ 85718
1-800-572-1717
e-mail: mda@mdausa.org
http://www.mdausa.org

Local

University of Texas
SW Medical Center at Dallas
2601 Flayed Road
Dallas, TX 75080
972-883-2111

Neurological Clinic of Texas
9400 N. Central Expressway, Suite 1100
Dallas, TX 75231

Wilson N. Jones Memorial Hospital
500 Highland
Sherman, TX 75092
903-870-4611

Medical services available through the MDA clinic:
Support groups, summer camp, or other services for people and families affected by a neuromuscular disease in MDA's program, please call:
Program Services Coordinator: 972-480-0011


Scoliosis

A lateral curvature of the spine in the thoracic, lumbar, or thoracolumbar spinal segment. The curve may be convex to the right (more common in thoracic curves) or to the left (more common in lumbar curves). Scoliosis is often associated with kyphosis (humpback) and lordosis (swayback).

Symptoms/Physical Findings

(Rarely produces subjective symptoms until it's well established)

Backache

Difficulty breathing

Fatigue

Uneven hemlines

Pant legs that appear unequal in length

One hip appearing higher than the other

National

International Federation of Spine Association (IFOSA)
9908 Cape Scott Court
Raleigh, NC 27614-9025
919-846-2204
e-mail: ifousa@aol.com
http://www.ifosa.org

National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
e-mail: scoliosis@aol.com

The Scoliosis Association, Inc.
P.O. Box 811705
Boca Raton, FL 33481-1705

Local

Texas Scottish Rite Hospital for Children
2222 Welborn Street
Dallas, TX 75219
214-559-5000

Scoliosis information line: 214-559-7477
Qualification: Physician confirmed diagnosis
No charge for treatment

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Sickle Cell Anemia

Sickle cell anemia results from a defect in red blood cells that cause them to become sickle-shaped. Sickled cells impair circulation, resulting in chronic ill health and periodic crises.

Fast heartbeat

Chronic fatigue

Unexplained difficulty breathing

Aching bones

Increased susceptibility to infection

Chest pain

National

Sickle Cell Disease Association of America
200 Corporate Point, Suite 495
Culver City, CA 90230
1-800-421-8453

The Center for Sickle Cell Disease
Howard University
2121 Georgia Avenue NW
Washington, DC 20059
202-806-7930

Sickle Cell Information Center
Emory University School of Medicine
Department of Pediatrics
http://www.emory.edu/PEDS/SICKLE

Joint Center for Sickle Cell and Thalassemic Disorders
Brigham & Women's Hospital
Massachusetts General Hospital
http://www-rics.bwh.harvard.edu/sickle/index.html

Local

Sickle Cell America Foundation of Dallas, Inc.
401 Wynnewood, Professional Bldg., Suite 205
Dallas, TX 75224
214-942-1262
214-948-9517 (FAX)

Texas Department of Health: Newborn Screening Program
1100 West 49th Street
Austin, TX 78756-3199
512-458-7111

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Spina Bifida

A defect in the arch of vertebra that results in a failure to fuse, most commonly the lower spine. Signs and symptoms vary according to the degree of spinal defect. When the spinal cord is involved, there may be neurological problems in the lower legs, bladder, and bowel.

Possible Physical Signs

At site of defect:

Skin depression or dimple

Dark tuft of hair

Port-wine stain

Collection of fat

Tethered cord

Meningocele

Myelomeningocele

National

Spina Bifida Association of America
4590 MacArthur Blvd., NW, Suite 250
Washington, DC 20007-4226
Program Number: FC 010087AA
202-944-3285
1-800-621-3141
http://www.sbaa.org

Local

Spina Bifida Association of Dallas
705 W. Avenue B, Suite 300
Garland, TX 75040-8240
972-238-8755


Additional Resources

Adoption

Growth Disorders

Albinism

Internet Medical/Health Resources

Cleft Palate

Juvenile Arthritis

Congenital Heart Disease

Lupus

Conjoined Twins

Parenting Training

Counseling Services (Genera)

Rape

Disabilities

Rare Disorders

Down Syndrome

Special Needs Camps

Drug & Alcohol Abuse

Suicide

Dyslexia

SIDS

Fetal Alcohol Syndrome

Vision

Adoption

Adoptive Families of America, Inc. (AFA)
2309 Como Avenue
St. Paul, MN 55108
Contact Person: Tom Richards, Executive Director
612-645-9955
1-800-372-3300
http://www.adoptivefam.org

National Adoption Center (NAC)
1500 Walnut Street, Suite 701
Philadelphia, PA 19102
Contact Person: Carolyn L. Johnson
215-735-9988
1-800-862-3678

Adopt A Special Kid - America (AASK)
2201 Broadway, Suite 702
Oakland, CA 94612
Contact Person: Vali Ebert, Adoption Supervisor
510-451-1748

Albinism

National Organization for Albinism and Hypopigmentation
RR 1, Box 655
Red Oak, OK 74563-9759
Contact Person: Charla McMillan, President
215-545-2322
http://www.albinism.org

Cleft Palate

Cleft Palate Foundation (CPF)
1829 East Franklin Street, Suite 1022
Chapel Hill, NC 27514
Contact Person: Nancy C. Smythe, Executive Director
919-933-9044
1-800-242-5338
919-933-9604 (FAX)
http://www.cleft.org

Congenital Heart Disease

American Heart Association
7272 Greenville Avenue
Dallas, TX 75231-4596
214-373-6300
http://www.amhrt.org

Conjoined Twins

Conjoined Twins International (CTI)
P.O. Box 10895
Prescott, AZ 86304-0895
520-445-0572

Counseling Service (General)

Concerned Counseling
Provides access to counseling through private chat rooms, or by e-mail or telelphone. Counselors available through website from 10:00 am to 10:00 pm CST, 7 days a week or by phone 24 hours a day.
e-mail: counselor@concerned counseling.com
http://www.concernedcounseling.com

Counseling Institute of Texas
705 West Avenue B, Suite 306
Garland, TX 75040
972-494-0160

Salesmanship Club Family Therapy Center
106 East 10th Street
Dallas, TX 75203-2296

SAFETY NET Program
Child & Family Guidance Centers
8915 Harry Hines Blvd.
Dallas, TX 75232
214-948-3490, Ext. 3136
214-352-0871 (FAX)

Disabilities

National Information Center for Children & Youth with Disabilities
P.O. Box 1492
Washington, DC 20013
202-884-8200
1-800-695-0285
TDD 202-884-8441
http://www.nichcy.org

The Alliance of Genetic Support Groups
430-1 Connecticut Avenue NW, Suite 404
Washington, DC 20008-2304
1-800-336-4363 (GENE)
e-mail: info@geneticalliance.org
http://www.medhelp.org/geneticalliance

Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234
412-341-1515
412-344-0224 (FAX)
e-mail: ldantl@usaor.net
http://www.ldanatl.org

The Family Village (Provides information on all disabilities)
Waisman Center (University of Wisconsin-Madison)
1500 Highland Avenue
Madison, WI 53705-2280
608-263-5973
http://www.familyvillage.wisc.edu/

March of Dimes Birth Defects Foundation (MOD)
1275 Mamaroneck Avenue
White Plains, NY 10526
914-428-7100
1-888-663-4637 (MODIMES)
TDD 914-997-4764
http://www.modimes.org/

Down Syndrome

National Down Syndrome Society (NDSS)
666 Broadway
New York, NY 10012-2317
Contact Person: Myra Madnick, Executive Director
212-460-9330
1-800-221-4702
http://www.ndss.org/

Parent Assistance Committee on Down Syndrome (PACDS)
Family Res Center/Family Connection
Westchester Institute Human Development
Cedarwood Hall, C-121 WCMC
Valhalla, NY 10595
Contact Person: Barbara Levitz
914-739-4085

National Down Syndrome Congress (NDSC)
1605 Chantilly Drive, Suite 250
Atlanta, GA 30324-3269
Contact Person: Frank Murphy, Executive Director
404-633-1555
1-800-232-6372
http://www.carol.net/~ndsc/

Drug and Alcholo Abuse Crisis Line

Hotline: 1-800-578-3167 (24 hours)

Dyslexia

International Dyslexia Society (ODS)
Chester Building, Suite 382
8600 LaSalle Road
Baltimore, MD 21286-2044
410-296-0232
1-800-222-3123

Fetal Alcohol Syndrome

National Organization on Fetal Alcohol Syndrome (NOFAS)
1819 H Street NW #750
Washington, DC 20006-3604
Contact Person: Patti Munter, Executive Director
202-785-4585
1-800-666-6327 (1-800-66NOFAS)
http://www.nofas.org

Fetal Alcohol Network (FAN)
158 Rosemont Avenue
Coatesville, PA 19320-3727
610-384-1133

Support and Education Network for FAS Parents and Caregivers
P.O. Box 626
Paramus, NJ 07653
201-261-2183

Growth Disorders

Human Growth Foundation (HGF)
7777 Leesburg Pike, Suite 202-S
Falls Church, VA 22043
Contact Person: Kimberly Frye, Executive Director
703-883-1773
1-800-451-6434
http://www.genetic.org/hfg/

MAGIC Foundation for Children's Growth (MAGIC)
1327 North Harlem Avenue
Oak Park, IL 60302
708-383-0808
1-800-362-4423

Little People of America, Inc. (LPA)
P.O. Box 9897
Washington, DC 20016
301-589-0730
1-888-572-2001

Internet Medical/Health Resources

InteliHealth
John Hopkins health information
http://www.intelihealth.com/IH/ihtIH

Extensive site including articles, "ask the doc" feature, drug index, and links to other health resources and organizations.

Kid's Health at the AMA
http://www.ama-assn.org/insight/h_focus/nemours/index.htm

Short articles useful to parents on accident prevention, childhood infections, child development to age 2, emergencies and first aid.

Parent's Place.com: Ask the Doctor
http://www.parentsplace.com

Large collection of materials for parents written by a pediatrician. Site features essays and chat boards on a wide range of topics.

Patient Education Program (PEP)
Children's Hospital Medical Center, Cincinnati, Ohio http://www.parentsplace.com/genobject.cgi/readroom/dr answers.html#doc

One or two page illustrated discussions/instructions regarding common and uncommon pediatric diseases, conditions, surgery, procedures, home care, general health information and medications.

Pregnancy & Child Health Resource Center from May Health O@sis
http://www.mayohealth.org/mayo/common/htm/pregpg2.htm

Collection of articles from the Mayo Foundation. One or two page articles on topics such as "Acetominophen in children - Is it safe?," "10 Halloween safety tips - Protecting your ghosts and goblins."

Juvenile Arthritis

American Juvenile Arthritis Organization (AJAO)
1314 Spring Street, NW
Atlanta, GA 30309
404-872-7100
http://www.arthritis.org/ajao/

Lupus

Lupus Foundation of American, Inc. (LFA)
4 Research Place, #180
Rockville, MD 20850-3226
Contact Person: John Huber, Executive Director
301-670-9292
1-800-558-0121 (answered M-F, 9 to 5)

Parenting Training

Child and Family Guidance Centers (CHANCE Program)
8915 Harry Hines Blvd.
Dallas, TX 75235-1717
214-351-3490

Rape

Rape Crisis Center
1-800-886-7273 (24 hour hotline)

Rare Disorders

The National Organization for Rare Disorders, Inc.
P.O. Box 8923
New Fairfield, CT 06812-8923
203-746-6518
1-800-999-6673
http://www.rarediseases.org

Special Needs Camps

Camp Sweeney
Box 918
Gainsville, TX 76241
940-655-2011
http://www.campsweeney.org

Camp John Marc Myer
811 Preston Road, Suite 807
Dallas, TX 75225
214-360-0056

Texas Lions Camp
P.O. Box 247
Kerrville, TX 78029
830-896-8500

Camp C.A.M.P.
P.O. Box 27086
San Antonio, TX 78227
210-671-2598
210-761-3290 (FAX)

Camp Easter Seal
620 N. Alleghany
Odessa, TX 79761
915-332-8244
915-580-7428 (FAX)

Suicide

The Suicide and Crisis Center
2808 Swiss Avenue
Dallas, TX 752044
Suicide Crisis Line: 214-828-1000 (24 hours)

SIDS

Sudden Infant Death Syndrome Alliance, Inc. (SIDS)
1314 Bedford Avenue, Suite 210
Baltimore, MD 21208
Contact Person: Judith Jacobson
410-653-8226
1-800-221-7437

Vision

Lions Sight and Tissue Foundation
P.O. Box 270904
Dallas, TX 75227-0904
Clients who need eyeglasses MUST be referred by a caseworker from a licensed agency who is familiar with the client's situation and can document the need. Sliding scale fees.

Lens Crafters
Contact local Lens Crafters office, ask for "Gifts of Sight" store captain for information on qualifying for vision needs. Donated frames are provided for those in financial need.

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